Injecting a little emotion into my day…

Just gave myself my Humira injection for the fortnight. It’s a really strange sensation injecting yourself… for some reason I feel like I should have someone with me when I do it. It’s not that I am not sure how to do it and need to be “spotted”, it’s just that for me, there is sort of this lonely feeling of doing it, like I am medicating myself all on my own.

Super strange, considering I take my own meds without anyone needing to be around me (in fact, I prefer to do it privately anyway!), but stabbing a needle into your belly just seems a little more invasive, thus a little more “real” that there are things not quite right with your body. I mean, we can take tablets for anything and everything really – you got a bad headache, take a Panadol… take vitamins if you have a cold – so taking medication isn’t too far of a stretch from the norm. But when I’m puncturing myself to administer medication into my blood stream, it is a little full on. [Read more…]

Fistulising Crohn’s Disease Treatment

Fistulising Crohn’s Disease treatments

A good read about fistulising Crohn’s Disease and the treatment methods available including Infliximab, Humira and antibiotics. YAY winning combination!

However, a bit upset with the comment that perianal fistulae are a “disabling complication” of Crohn’s disease – true, it is… don’t want to be reminded of it… but then it mentions that this leads to a reduced quality of life… BOOOOOOOO!!!!!!!!!!!

Fuck you Crohn’s. Not going to let you reduce my quality of life!

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The Humira Trap

I’ve completed my first sets of Humira injections – the first set consisted of 4 injection pens that were SUPER painful that caused me to cry and bruise on my stomach at the puncture point. The second set was only with 2 injections, and I must say, having the injections out of the fridge really helped diminish the pain…for some reason, when it’s colder, it hurts more. I ain’t no doctor so I’m not sure of the explanation for this one. Anyway, now I am ready for my 1 injection, every 2 weeks. I’m due tomorrow to do it.

So the dilemma is, because my initial reaction to the injections was a mini breakdown in front of the nurse in the hospital, they enlisted me in a program that would provide me with support over the first 3 self-administered injections at my own home. What a fantastic program – they send out a nurse who is happy to assist me as I inject myself for 10 seconds, and they are just there to help me with any concerns I may have, in the privacy of my own home…for free. Initially, I was really excited about this program, considering that I am not as brave as I’d like to think I am, and having the support of a trained medical person in my home while I administer this large injection at any time that suits me, is a great feeling. FINALLY I don’t have to wait for the next available appointment at some obscure time…I don’t have to take time off work, worry about getting to an appointment on time, waiting way past my appointment time for my doctor who is running late… in the comfort of my home at my own time of convenience, a nurse will come to me.

[Read more…]