Crohnology

No, I haven’t mispelled chronology – as a History teacher I know how things work in a timeline. What I’ve found in my research and through my searching of treatments that there is a fantastic site called Crohnology which is for Crohn’s sufferers to connect to other Crohnies in their area and trade treatment secrets. When you join, you identify when you were diagnosed, what treatments you tried, and your own wisdom about what worked and didn’t work and the reasons behind it all.

It’s all about Crohn’s patients empowering themselves and others with hopeful advice on treatment options out there, without the feeling that certain doctors are advocating specific treatments, or offering you advice on conflicting treatments. It also gives you the opportunity to chat with other Crohn’s patients, ask questions in forums, and indicate how you are feeling currently on a scale. A great place to start searching for answers, and also a great place to visit when you are having one of those shitty “Why me? day, and you can go online to this support group and see that you are not alone.

 

Fistulising Crohn’s Disease Treatment

Fistulising Crohn’s Disease treatments

A good read about fistulising Crohn’s Disease and the treatment methods available including Infliximab, Humira and antibiotics. YAY winning combination!

However, a bit upset with the comment that perianal fistulae are a “disabling complication” of Crohn’s disease – true, it is… don’t want to be reminded of it… but then it mentions that this leads to a reduced quality of life… BOOOOOOOO!!!!!!!!!!!

Fuck you Crohn’s. Not going to let you reduce my quality of life!

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